CHANDIGARH HAEMOPHILIC WELFARE SOCIETY OBSERVES WORLD HAEMOPHILIC DAY

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CHANDIGARH HAEMOPHILIC WELFARE SOCIETY OBSERVES WORLD HAEMOPHILIC DAY

CHANDIGARH APRIL 17:

The Haemophilic Welfare Society of Chandigarh today observed world hemophilic day here at Khudda Jassu near PGI and organized a day long open clinic for patients with Haemophilia (PWHs) for the effect treatment and management of the disease.

Addressing the Haemophilic patients on the occasion, Dr. Harpreet Singh, President of the Society said that the state governments of Punjab, Haryana, Himachal Pradesh and Union Territory of Chandigarh should immediately address to the problems of PWHs and chalk out a strategy to give adequate financial, medical and moral support to them in order to cope up with this mental trauma. He pointed out Haemophilia was a hereditary disease characterized by deficient activity of blood clotting factors of VIII & IX. Dr. Singh emphasized on the need to provide necessary backup support to the affected parents to enable them to cope with the tremendous psychological stress from the day one when their child was diagnosed as a Haemophilic. To achieve this objective NGOs and other social and voluntary organizations could play a vital role in overcoming the stress encountered by these hapless parents for none of their fault. Similarly, PWHs should also be encouraged and motivated considerably to lead a happy and normal life by giving them timely care and treatment and concerted efforts should be made by the parents, teachers and medical fraternity to boost their morale so as to lead them a normal; life without developing a feeling of inferiority complex amongst them.

Dr. Singh further said that the society was vigoursly pursuing the case of free supply of Factor VIII and IX with the state governments of Punjab, Himachal Pradesh and Union Territory of Chandigarh on the pattern of Delhi, Haryana, Kerala, Karnataka, Andhra Pradesh and Maharastra

Dr. Maghar Singh, Finance Secretary of the Society attributed this disease as purely a genetic disorder and had nothing do with a good or bad luck. He pointed out that it was the bounden duty of the parents to prepare their children psychologically to muster enough courage to bear the brunt of the disease. He advised the PWHs to get them regularly medically checked so as to maintain the base line of the factor VIII or IX. He also impressed upon the doctors of the PGI and research scientists to participates in the open clinics for the well being and benefit of the PWHs.

Earlier, the president of the society Dr. V.K. Chhabra appealed to the Central and State Governments to provide adequate medical and financial help to the Haemophilics. He also called upon the electronic and the print media to promote awareness about Hemophilia among public in general, doctors, paramedical staff and NGOs so as to minimize the sufferings of hemophilics. He also urged the members of society to form a core group to take up various matters with the Chandigarh administration and the PGI authorities in an effective and result oriented manner.

Dr. Dr.Pallavi Saini, Physiotherapist underscored to hold such clinics regularly and should be located in the hospital out patients thereby offering consultation in all necessary areas of specialized knowledge; hematological, surgical and orthopedic, physical and physiotherapeutic, dental, social and psychological & educational.

As many as 180 patients were clinically checked up on the spot and all of them were infused free Factor-VII besides vaccination of Hepatitis-B to 50 patients and booster dose to 30 patients. Dr. Saini practically demonstrated few exercises to the PWHs for improving the mobility of their joints.